Maddie's stats for her first year dr visit:
height - 50% can't remember the exact number, I'll have to look it up
weight - 21.5 lbs 50%
head - 95%, but we knew that and her growth is consistent which is good
The dr is pleased with the progress she's making and is going to monitor her pulminary, yay one specialist out of the way! Plus neuro and genetics are off my list! We will get her kidney ultrasound scan some time in January. This is just to rule out kidney issues b/c they develop at the same time as the ears and since one of Maddie's ears is a bit smaller, they want to be thorough.
Also, she passed her hearing test so I was happy about that.
Also, I was just thinking about her blocked tear duct and I don't think it's blocked so that is good! She's been doing patch therapy which has given great results, however the left eye still is not as strong. We go back in a couple of weeks to see what the dr recommends, most likely she'll have surgery. This will probably be done in January as well. (new flex spending account!)
One other thing if I haven't already mentioned it, she was approved to be placed on a waiting list of over 1000 individuals for the Medicaid waiver MR list, but unfortunately there is no funding for it, thanks Bev Perdue and Obama, I'm glad the $ I put in monthly is something Maddie can't even use. So really until Maddie turns 18, she won't be able to get a whole lot of government assistance or social security.
She has 2 top and 2 bottom teeth that started coming in at 8 months and more are on their way.
Here are some of the things she can do/say:
ah-da
da-da-da
mmmm (just started mmm sound last week!)
mamama
gaga
ba
blow rasberries
laugh
smile
hold 2 toys
bang the toys together
take toys out of a container
sit unassisted
transition from sitting to the floor semi gracefully!
stand when placed against something
take a step when holding someones hands
roll over both ways
extend hands to be picked up
push up when on tummy
eat stage 3 solids and some other table foods
can put a cracker to her mouth
drink whole milk - still needs to be warmed and likes it in a bottle!
She's doing great and making good progress, which is the goal. Still in therapy every other week and may get a walker shortly, thanks therapist Liz, those things aren't cheap! She's staying in the infant room when the other kids move up since she's not as mobile, that way they'll be able to accommodate her. Much more Maddie friendly! I will see how she's doing in 6 months and see if she's ready to move up to the 1 year class, otherwise, we'll just wait until next fall to move up.
We meet to discuss her progress with our early intervention coordinator and to see if we need to make changes, one of my goals is waving and I work on that a lot. I also am really working with her to get a non-verbal hand jesture to communicate, like milk. I thought she did it once, but I don't think that was the case.
Today I called Glaxosmith klein to see if their prescription drug assistance would help or if they had any coupons for Maddie's asthma med b/c it's not cheap, and they follow the same income allowance as the government, so individuals who are already getting government assistance, qualify basically for certain meds for free. They recommended me to some prescription drug assistance non-profits, and it's the same thing, low income. So frustrating, at least we have insurance and don't pay full price.
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